So after moving out of a house and enjoying a mold-free existence in a trailer for some months now, I’m going back to square one and looking for a house to prep for winter.  A little bit of background first:

If you read my last post, you’ll know that I’m doing rather extreme mold avoidance.  One reason I was forced into doing this was because I could no longer sleep in most indoor locations.  This hasn’t always been the case during my years sick with ME/CFIDS.  I used to be able to sleep anywhere as long as I had some klonopin handy.  That then became trazodone/doxepin, which then became restoril/benadryl.  Then the house where I grew up and where I was able to sleep in for much of the time I’d been sick became a place I could not get a single solid night of sleep, medications be damned.  Talk about breaking hearts across the ancestral lands.

Then one night I moved to a tent in my backyard and bam, conked out and slept like a baby.  In 40-degree weather, no less (I have extreme hot and cold sensitivities, hence the surprise).  That was my first clue.  Tried sleeping in the house when a thunderstorm hit, couldn’t sleep again, suspicions confirmed.  Then a few weeks later, I had to stay at a friend’s place near the beach, and I slept like a log there.  It was then that I finally gave into the credence of the “effect” from avoiding biotoxins and/or the credence of certain locations being better than others for the exquisitely-sensitive, and I haven’t turned back.

Fast forward to now.  Because it’s gonna be goshdarn freezing during the winter, my trailer will be below-goshdrawn-freezing (it’s aluminum so it conducts heat and cold extremely well).  So I have to give in and find something a little better insulated than a metal box, leading me to seek out a house like a somewhat normal human being.  I’ve been searching for months and finally thought I found the “it” house: an older wooden house up in a more remote area, and I tested it out for a night.  Wood can often turn out to be better than drywall if we’re talking about particularly noxious strains of mold rather than the conventional “musty mold” and even visible mold.  For the record, this house is chemical-free.  Well, this is the morning after, after I promptly hauled ass out of the joint that insisted on poking at my lungs and waking me up all night.  Too bad, because the owners are these awesome hippies that I wanna be friends with forever-ever. That or at least get some free essential oils out of.

So you see, it’s not that I’m academically-curious about this mold avoidance thing or trying to prove a point.  I have no choice if I want to get a good night’s sleep.  I haven’t met too many patients that are in a position where 1 out of 10 homes allows them to sleep, so my position may be completely irrelevant to most of you.  However, the flipside to having this problem is that if ampligen reduces inflammation, it should reduce overreactivity to every little thing, and I should be able to sleep in far more places than a metal box.  Reproducibility and obviousness of symptoms = easier to evaluate drug effectiveness, so I’ll gladly suffer a little more now if it means it’s a way to see whether amp really works.  A nice little silver lining wouldn’t you say?

About CityChanger

This blog is about my participation in a clinical trial for ampligen, an experimental immunomodulatory and antiviral drug, for ME (Myalgic Encephalomyelitis).

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